May 03, 2010
New hospital support group helps children with chronic pain
Hinsdale – A new support group at Adventist Hinsdale Hospital is the first in the U.S. for pediatric sufferers of Reflex Sympathetic Dystrophy Syndrome (RSDS), also known as Chronic Regional Pain Syndrome (CRPS), a rare nerve disorder that causes chronic and severe pain with no known cure, affecting over a million people in the US.
It is often misunderstood and can affect one or more extremities in any part of the body. Symptoms include burning pain, swollen or inflamed skin anywhere on the body. The exact cause is unknown but doctors believe it might be linked to a nerve disorder.
This group, for children who have RSDS/CRPS and their families, meets from 2 to 4 p.m. the first Sunday of each month starting June 6. It features open discussion and guest speakers addressing a variety of topics related to RSDS, including new treatments and medication. Meetings take place in the Lincoln Room at the hospital, 120 N. Oak St., Hinsdale.
“The goal of these support groups is to help children with RSDS, along with their loved ones, learn how to live with the pain and find hope and encouragement,” said Dr. Ahmed Elborno, medical director of Adventist Hinsdale Hospital’s Pain Management Center of Excellence.
Edwina Schaeffer, executive director of the Illinois RSDS Association Support Group, coordinates the support group at Adventist Hinsdale Hospital.
“We help educate our members and their families about their medications, new procedures and anything that’s available to help them help themselves,” Schaeffer said. “Our goal is to give patients and anyone with this chronic condition the help they need right in the own community.”
For more information on the support group, call Schaeffer at (630) 665-0717.